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Wednesday, June 19, 2013

Stay Strong

I don't even know how to begin this post.

Yes, today has been a start of a great day for my family in San Fran, but that post will be put on hold because this deserves much more attention...

The devastating news came this morning that sweet Millie Flamm passed away.
I was shocked. I almost cried when I found out, but I believe it will come later as soon as I get home and it hits.

She was one of the strongest people I've known.
Vague memories take up some of my long lost, never-want-to-be-remembered childhood occurences of being in the hospital. That is, for weeks. For months. Again and again for years. Being away from family at times, coming up with crafts and watching endless Disney Movies, trying to smile amongst the pain of 7+ surgeries, of which I still have the scars that take my whole stomach. Not sure what was going to happen, but staying strong.

Millie, however, fought so much harder in these 3 1/2 years than I will ever in my lifetime. At this point, I am wondering how such a menacing, deviating condition can exist--cancer.
I'm still not sure why it has to exist. Many may wonder why God would ever give this to some of his precious children.
That exact answer, to be honest, I don't know. I'm still pondering about it. However, I do know that from my experiences, I have drawn closer to my Savior more than I ever would have. Our Savior, after all, offered himself to feel every sin, sorrow, and pain for each of us. If he could have done it just for you, he would have.
I also know that these children and patients have been some of the strongest to live.
Millie, for instance, has increased my strength and perseverance. Even in my early adult years, just the thought of "this is painful at the moment," would be silenced by thinking how courageous and strong Millie (and Tyler) were.
 They weren't afraid to be themselves. I've seen pictures and videos of Millie in the hospital still being silly and looking for fun. She persevered with a smile on her face for as long as she could. Tyler also impacted my life and showed an even greater value of having good friends and family around while reaching out to others despite life's hardships.
Their experiences have influenced thousands (including Justin Bieber--you can read that post on here of how he came to visit Millie.) I'm only one of those thousands whom they have influenced.
Their families fought hard as well. They have given the best support for their daughter and son and each other, as well as having received help and strength from others.
Millie fought Leukemia twice until age 7, and Tyler until 17 (almost 18), but they now live freely without pain.
So, if you are reading this, let's take a moment and remember Millie's example and how she spread joy.
To all my "Cysters" or "Fibros" or anyone else who may need an extra push or encouragement, let's remember how hard she fought, and how she stayed strong amongst life's greatest challenges.
Both her and Tyler left a legacy.
Let's remember and live it.


Just seeing this made me picture Ty giving her the biggest hug for everything she went through as soon as they both met up in Paradise. I'm sure he's been her guardian for a while and now they can help and encourage others who are still fighting.


Thursday, June 6, 2013

Huh?...


How did 2 years already go by? 
How have I already finished 2 years at Byu (and still not exactly knowing what I'm going into hahaha)
How did my "little" bro get this tall?
How is Brandon the last one as he is graduating next year?

And how did Brandon get so buff? ;)
This was 2 years ago:

Smile Joshie :)











Yes, I remember I had the worst cold that graduation day making me snuffling and sneezing all day.
Other than that it was a great day with family and friends while being glad we were done with high school and moving into the adult world (hahahahaha....)
Where has the time gone?
I know this may be another one of those annoying reminiscing posts, so moving on...

Other good things, on top of graduation:

Josh was ordained an Elder. Yes, you heard me. That's right. Having the priesthood in our home again feels so incredible. It makes a difference. There have been long periods of time in my life where I didn't have it close by, and Josh has worked so hard for this. I'm incredibly proud of him!


Last but not least, I know I have said this before but now it's official....I'M OFFICIALLY DONE WITH THE 25 MINUTES OF TOBI!! Bam. Like that. In August I will be starting the Tobi Podhaler as part of my 1 every 3 months worth of Tobi to keep Pseudomonas away. This Podhaler only takes 2 minutes instead of 20-25. That saves a little over 24 hours of time each month I'm on it! I mean, sitting there breathing in an absolutely disgusting med for 25 minutes is not how I like to use that time when I could be doing other things. I cannot express how glad I am for scientific advancements and discoveries. This is why research and trials are crucial. Next big stop: the new Kalydeco. I won't even go into how anxious and excited I am for that :)