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Showing posts with label Treatments. Show all posts
Showing posts with label Treatments. Show all posts

Friday, July 20, 2012

Just a typical morning

Triple tasking, getting ready for work like a super boss when I had to leave in 10 minutes, with no treatment done and hair soaking wet. I really need to work on getting to the gym earlier so I can get back sooner!!

(No, I'm not pointing a gun to my head while doing treatment--for those of you who don't know, that's a diffuser connected onto a blow dryer so my lion mane doesn't go too wacko.)

Tuesday, July 3, 2012

This summer

Nothing much has been happening this summer, to be honest. My schedule now goes along something like this:

Wake up
Either go to the gym, do insanity, or go running.
Eat breakfast.
Do treatment.
Get ready.
Power walk to work, including climbing the large flight of stairs.
Work.
Take a break.
Make dinner.
Either go to family home evening, Institute, watch some TV, or whatever comes along
Wash the Pari treatment pieces.
Do treatment.
Get ready for bed.
Go to bed.

There have been a few fun nights of playing commando on campus, movie nights, or just singing songs with a few new friends on 2 random mattresses found outside a friend's apartment. Earlier this summer we had a huge slip and slide that went down a hill at the park. Hopefully a few more adventures will come, but this summer is more of a relaxed one. I've found myself having to stay inside most of the time due to some serious air pollution from major fires, and not being able to tolerate the heat too much. However, this fall I'm auditioning to be a character at Disney World /applying for the Disney College Program for next summer, and would be more than thrilled if I get any job there. I would be able to meet people from around the world and even volunteer at Give Kids the World, where my family visited several times during my Make-A-Wish 7 years ago.If I get accepted into the program, I'm going to have to learn how to handle the heat. Anyways, I'm just rambling again, but that's my summer update for now.

Thursday, May 17, 2012

New Treatment plan

After my clinic visit yesterday, seeing my PFTs slightly dropped, I knew I needed a new treatment plan, especially keeping up with cardio exercise. I read about a similar treatment plan from another CF patient, so I decided I am going to try this out:

Wake up (still figuring out best time) sometime around 6:45
Put in contacts/slightly get ready and put on running outfit
Eat a small amount of food for energy
Take albuterol
Run for 30 minutes, stretch, then a little bit of core strengthening
Finish treatment with Hypertonic Saline, Pulmozyme, (and Tobi when needed.)
Not forgetting the "huffs" in between each medication :)

I tried this plan this morning. As expected, the Albuterol seemed to open up my airways for an easier run (p.s., did you know that sometimes people give race horses Albuterol to open their lungs before they race?), the run opened up my airways even more, then the Hypertonic Saline and Pulmozyme moved the gunk around a lot more to be easier to cough up. Let me tell you, this feels amazing!! I believe it's the best natural high in the morning! I believe it will do much more than just sitting, taking med after med. To be honest, I don't think I'll always have time to complete this full treatment plan with the run in-between, but I'm going to try to do this at least several mornings a week. I now have to face the fact that another part of becoming an adult is that exercise is not just a "good option," but a necessity.

Friday, April 13, 2012

I should be studying right now

But then I got distracted. There's nothing wrong with a break in between many hours of studying :)






That's what can happen after you are stuck in your room looking over textbooks and notes for finals for so long.